DMD Patient Engagement Lead (PEL)

Job Description

Job Title:

DMD Patient Engagement Lead (PEL)

Department:

Patient Services

Location:

Reports To:

Sr. Director, Patient Services

Status:

Regular, Full-time, Exempt

Start Date:

Compensation:

Job Summary

Reporting to the Sr. Director, Patient Services, the PEL position is a key field-based member of the Patient Services team, who is a patient and community-facing colleague who serves as a patient educational resource for local advocacy groups, their patient members, and Duchenne Muscular Dystrophy (DMD) patients enrolling into NS Support® patient services. The PEL is responsible for educating patients/caregivers on understanding the steps required to gain access to therapy and serving as a primary liaison to patients. An additional function of the PEL is to liaise with community-based advocacy and patient groups and their constituents on approved programs, resources, support and services available from NS Pharma.

Essential Duties and Responsibilities
(Include but not limited to the following. Other duties may be assigned.)

  • Serve as primary point of contact for all patient/caregiver interactions and communications to gain initial access and continued support to patients. Deliver NS Support® patient services programs that educate patients on access, patient journey and process, affordability solutions and site of care information.
  • Refer Viltepso (viltolarsen) patients to their healthcare provider for medical advice in all instances.
  • Serve as the primary patient interface for the insurance support from the patient perspective, problem resolution, access support, and education (such as providing NS Pharma approved education and disease state awareness resources to patients and families).
  • Help educate the patient/caregiver on coordination of care, appeals/denials, having adequate product supply and reauthorization requirements and timelines to have more meaningful communications with providers.
  • Provide patient/caregiver updates on NS Support® status including appeals/denials, Co-Pay, Bridge, PAP, reauthorization, and reverification.
  • If requested by a Caregiver, meet with them in-person to review/educate patient journey using only NS Pharma approved materials in an approved business venue conducive to patient education.
  • Work closely with patient HUB case managers from NS Support® (vendor partner) to educate the patient on their access status and to help resolve patient access issues in partnership with the Director of Patient Access (DPA) team.
  • Work collaboratively with all appropriate applicable stakeholders and coordinate with the NS Support® team to achieve patient education and access.
  • Develop and maintain professional relationships with local and regional advocacy groups to advance the needs of DMD patients. During advocacy events, direct to Medical Affairs all requests for medical or scientific information (if available) or refer to the Medical Information Call Center or HCP.
  • As directed, staff exhibit booths at a PAG events or other patient-oriented events as approved.
  • Manage the receipt of PAG sponsorship requests and facilitate the review and approval of such requests to Medical and Legal to ensure proper review and approval.
  • Ensure all aspects of patient engagement are implemented in a thoughtfu

Qualifications

  • Deliver impactful results.
  • Thorough understanding of local, regional, and national insurance authorization policies and barriers.
  • Strong disease state knowledge of DMD and Patient Advocacy with the ability to maintain high ethical and compliance standards aligned with NS Pharma’s Code of Conduct and all policies and guidance provided.
  • Demonstrate trustful relationships with internal and external stakeholders to accelerate business achievements; encourage and leverage diversity to improve outcomes.
  • Seek new opportunities to create value for patients.
  • Demonstrate curiosity and learns from the experience of success and failure; proactively shares knowledge with others in order to affect continuous improvement.
  • Support the implementation and acceptance of change across organization.
  • Passion for addressing unmet needs within the DMD patient community
  • In depth understanding of the HQ-approved educational presentations
  • Must be able to work effectively in a multi-cultural, global team environment.
  • Ability to drive and/or fly to meetings and client sites.

Education and/or Experience

  • BS, BA required with equivalent or related degrees in healthcare (e.g. MPH, Nursing or PA);
  • Fluent in Spanish highly desirable.
  • Case management, patient services, or pharmaceutical market access experience a plus.
  • At least 3-5 years of overall healthcare experience in various roles and responsibilities; US pharmaceutical industry experience preferred.
  • Experience in a Specialty Pharmaceutical field-based role is preferred.
  • Experience in a role centered on the marketing of services to help patients gain access to and/or use a specialty branded drug is also preferred.
  • Understanding of insurance (Medical, Pharmacy, Home Infusion) benefit designs, prior authorization processes, appeals/denials/exceptions, Buy & Bill process, home infusion and specialty pharmacy treatment pathways.
  • Proven ability to build, maintain and influence effective working relationships with key internal and external stakeholders.